Darius Antonides

@TeamDarius

I'm (13) & My Mom Is Starting A Charity 4 All PVL Kids Like Me! PLEASE HELP MY MOM & ME! #PVLWARRIOR #ONELOVE

Photos and Videos by @TeamDarius

  • Timeline
  • Gallery

TESTING ORDERED FROM (CPS) ~POOR D-MAN (2 WEEKS IN A ROW)

  • 913 days ago via site
  • 81

UPDATE: Why We Have Taken: (Staycation of Twitter/Facebook) #TeamDariusPVLARMY

  • 913 days ago via site
  • 111

UPDATE: Why We Have Taken: (Staycation of Twitter/Facebook) #TeamDariusPVLARMY

  • 913 days ago via site
  • 101

UPDATE: Why We Have Taken: (Staycation of Twitter/Facebook) #TeamDariusPVLARMY

  • 913 days ago via site
  • 91

UPDATE: Why We Have Taken: (Staycation of Twitter/Facebook) #TeamDariusPVLARMY
I Have Had the Worse Year Since April of Last Year, When I Lost My Mom & 2 Other People That Where SO Important 2 OUR Family and Still Have Fall-Out From It Including “COMPLETE CHANGE” Of D-Man’s & My World but More Of That LATER in the Update. I Don’t Think I Ever Recovered and/or Even Dealt W/ any of it. I Just SHOVED It Done W/ Everything Else…. It’s Just What I Do!
***NOW IT HAS ALL CAUGHT UP WITH ME*** and I Am Reaching Out 4 Some SUPPORT, I Tried to Deal W/ It and Have Done Poorly. I Just Need “Fresh Eyes and/or A Fresh Brain That’s Not Anxiety-Riddened”!!! Things Have Gotten SO Out of Control/Going On @ The Same Time. I Just Can’t keep Up W/ it ANYMORE. Some Things (IF) I Don’t Make the Right Decision. Things Can Get Down Right Scary & I Could End Up in Some Places That are Down Right SCARY 4 D-Man & I….!!!!
Things Started in Late *(Sept of 2013)*:
Greg, Decided 2 File 4 “SSI”, He Had Watched Me Fight 4 D-Man’s (SSI) In 2005 When They Tried to Take it From Him, After He Received It Since Birth Due to (PVL) Which Had NEVER Been Set As A Precedent Until My Case For Darius. It Took Me (3) Years & Going Up Against A JUDGE With No Lawyers, Just A Box of Medical Records, MRI’s (ETC) and I Faced (7 Lawyers) On The Government’s Side. I WON & D-Man Has it Until He Is 19 and Then He Files @ Adult. Then, Greg Also Watched Me Fight For My Own (SSI) For (4) Years and Went Against The Judge & Won 4 Myself. SO When He Filed He Thought He Would Have The Same Years to Fight & By This Time Darius Would Be in High-School…Well, That Didn’t Happen…He Didn’t Have to See A Judge, They Just Handed it to Him In (42 Days) and Changed D-man’s & My (LIFE) as We Know/Knew It….it’s Called “Trickle-Down Government Fuckanomics!”
EARLY *(October 2013)*:
All Letters From Social Security (SSI) Had Greg’s/My Name Together and I Was Horrified! Didn’t Know Why, Just Knew Nothing Good Could Come From It! Come to Find Out, They Had Combined Our Income & He Got The Whole $1,400 Instead of $700 (Me) & $700 (Him) Because He Outranked Me Because He Paid into the Program & I Didn’t. SO 2 Make A Long Story Short, We Were Tied 2gether & I Had (6) Months 2 Untie It or I Would Lose My (SSI) & Re-File & I Would Lose My Medicaid Immediately and. Just On My (Anxiety Pills) to Keep Me Stable in D-Man’s “Unstable Life” We Live Were Thousands Of Dollars. So NOW I Was Facing (No Financial & No Medicaid) Greg & D-man Would Be Covered Tho-. Started talking Between All the Agencies Involved: It Just kept Coming, More Changes and They All Were Bad News and D-Man’s Stuff Was NEXT!




By Early *(November/December-2013)*:
Early In November, I Got Let Go of (3) Doctors In A Row and Couldn’t Figure Out Why, Went To Go Get My Cortisone Shots & Found Out That the (CDC) Had Moved “Hydrocodone” Into The Bracket of Morphine (etc) & I Had Been on A “Drug Contract” for 10 Years 4 Chronic Pain & am 2 Young 4 “Double Knee Replacements” & My Surgeon Refuses 2 Do it Until I Was In My Early 50’s. The (CDC) Put Massive Restrictions on the Dr.s, to Take All Patients Off Or Risk Losing Their Own Licenses. Guess Who Got Dropped “Like a Hot Potato” & Nothing Put in it’s Place. Just Cortisone Every (90) Days. SO Pain is NOW Constant & Sometimes Unbearable 4 Me….Especially on D-man’s Seizure Days!
While This is Going On, Last Part Of November 2013…I Get A Knock On the Door & SURPRISE, It’s CPS! Someone Had Made an Accusation of “Child Endangerment/Felony-Child Neglect of “Not Giving Medication to Special-Needs Child Under 18!” [SAY WHAT??????] Well, If People Remember, Some Chick On FB, Made Some Nasty Accusations About a Posting of a Video Of D-man (Ambulance) She Used The Words “Child Neglect” and/or It Could Have Came From the School W/ All Darius’s Absences From Seizures. We Will NEVER Know BUT Still It Sits OPEN TODAY!
*(December/Early January 2014)*
By This Time, (Greg & I) are @ Each Others Throats Constantly, Knowing We Have 2 Untie From Each Other, Meaning DIVORCE & We Have to Move Away From Each Other! D-Man’s~ No Longer Will Have His Dad 24 Hrs A Day..The Beginning of the End Was Starting 4 Our Family!
*(January 20th-My Birthday/February)* 2014
Received Letter From (SSI) No Check Starting Feb.1st & No Medicaid! 2nd Visit From (CPS) With NO CLOSURE and By Feb. 1st, I Would Have 2 Find A Lawyer Who Could Divorce Us, Which Would Start 2 Untie Greg & I But He Would Have 2 Move Out The 1st Week Of February So I Could Get My Medicaid Back In March & Money Because he Had 2 Move Out & I Had 2 Pay Rent (Etc)… Found A Lawyer, Filed On 2/18/14.
*(February 28th, 2014)*
I Went Out to Get the Mail & There Was a Letter Taped to the Door! What Now??? I Opened It & It Was a (60 Day Notice) to Vacate the Property That We Have Lived in For (8) Years. Have to Move On April 30th by Midnight (D-Man & I)
*(March 4th, 2014)*
Greg Moved to His Own Apartment But D-Man Does Not Know. Greg Shows Up to Put Him On the Bus in (7am) & Stays From (3pm-9pm) & Then Leaves After D-Man Goes to Bed! D-Man Has No Clue That He Has 2 Move…He Has Been in The Hospital Twice in Two Weeks With Out of Control Seizures SO Not Going There With that 411!

*April 1, 2014
(Today, Have 2 Go 2 Housing Appt) to Fight W/ Them, Just Because Greg Moved Out I Shouldn’t Lose A Bedroom, Greg Shared A Bed Not A Bedroom. They Are Trying to Take D-Man’s “Seizure Room Away” Because There are 2 People Instead of 3. The Seizure-Room (SAFE-ROOM) Didn’t Change. Which Leaves Me (30 Days) to Find A (3 Bedroom) House or Risk losing D-man & Becoming Homeless W/ A OPEN (CPS) Case.
Now, You’re All Up to Date: Not A Pretty Picture……..If Anyone Would Like to Help By Maybe Knowing Someone Who Could Rent From, Help Us Pack, Move If We Find Somewhere to Go!!??? Any Thinking and/or ANYTHING Anyone is Thinking That I Have Not, Please Let Me Know…….Too Overwelmed & Just TIRED after These Last Months, Not 2 Mention the Anniversary of My Mom’s Death Coming in Weeks Ahead This Month.
We Love You, Stephanie & D-Man 

  • 913 days ago via site
  • 94
D-Man Is Back! #HappyNewYear #PVLWARRIOR
0:03

D-Man Is Back! #HappyNewYear #PVLWARRIOR

  • 1004 days ago via site
  • 154

Auntie Jennifer Oertwig , DO U KNOW THE INFO ABOUT "SPECIAL NEEDS" SANTA? I WAS GING TO CALL TODAY SO D-MAN COULD HAVE SOME TYPE OF CHRISTMAS BUT IT WAS GONE OFF MY PAGE?????? NEVER HAD THAT HAPPEN BE4!!!!! Please Get Back 2 Me ASAP Cuz Christmas Looks Like Not WORTH Putting Up A TREE Cuz It Would TORMENT D-Man! Stephanie — feeling alone in Lincoln, NE.

  • 1024 days ago via site
  • 150
http://yfrog.com/picsy Video To Go With The Song Written For Darius Antonides!
Stephanie Hebard Team Darius Darius Poppi Antonides was just messing around on the computer and came up with this video. Stephanie Hebard will give you the back story and the story of Darius' song. D-Man Had TheCoalition Fightmusic Hear His STORY & They Felt They Needed To Celebrate His & My Life! It Was MADE To Help Me (RAISE) The $500 To Be The 1st (PVL) Charity In The World, Called "TeamDariusPVLArmy" Which I Am STILL Trying 2 Raise! I Have Made everything LEGAL, I Have...See More — with Greg Antonides and Stephanie Hebard in Lincoln, NE.
1:26

http://yfrog.com/picsy Video To Go With The Song Written For Darius Antonides!
Stephanie Hebard Team Darius Darius Poppi Antonides was just messing around on the computer and came up with this video. Stephanie Hebard will give you the back story and the story of Darius' song. D-Man Had TheCoalition Fightmusic Hear His STORY & They Felt They Needed To Celebrate His & My Life! It Was MADE To Help Me (RAISE) The $500 To Be The 1st (PVL) Charity In The World, Called "TeamDariusPVLArmy" Which I Am STILL Trying 2 Raise! I Have Made everything LEGAL, I Have...See More — with Greg Antonides and Stephanie Hebard in Lincoln, NE.

  • 1025 days ago via site
  • 127

Mikayla Helmkamp On Facebook: (Who Wrote This Message 12 Hours Ago) On My Page "Stephanie Hebard" ~ Who Is NOT My Friend, We Share A Friend (Patty Abbott) Only:

"Why are you taking pictures of your kid being loaded up into an ambulance...? Why would you not be 100% focused on the fact that YOU KID IS SO SICK HE IS HAVING TO GO TO THE HOSPITAL IN AN AMBULANCE....here you are snapping pics for facebook..... smh some people though."


Why Don't You Talk 2 Pattie Abbott , Rhonda Buchholz Little Brenda Buchholz Trail Gaileen Haselwood-Massey Mary Kay Buchholz Darius'sPoppi Antonides Regarding What Kind Of Parent I AM ????? Patty Abbott Is (1) Of My Son's Grandmother and Mary Kay Buchholz, His Other Grandmother.

I Started This #PVL Site On My Page (7) Years Ago. (1 In 78) Premature Babies R Born With #PVL & The Parents Are SO Scared Because Their Dr.s Don't Know, Even Know How To Spell (Peri-Ventricular Lukamalsia) & 50% Of Boys & 35% Of Girls DIE Be4 Their (10th) Birthday! So I Have A (12) Yr. Old Boy Who Has Made It This Far SO I SHARE GOOD/BAD Of What I Know In "REAL-TIME" What I Know About Raising A Child With #PVL...Not Only Do I Have "This Page" & A "Team Darius" Page But I Am Raising Awareness On A #PVL Support Group Page and Lastly A Page On Twitter. I (Mother) Was In Talking To (911) As The Ambulance's Were Coming 2 My House, My Husband Greg Antonides Was Smoking Waiting 4 Them Outside. Most Times When (911) Comes Out, They Throw Both My Husband & I Out Of The Way Because They Know Team Darius (D-Man) By His 1st NAME and Probably Know His Medical History Better Than His Dr. & Specialist Team Involved.

BTW: My (D-Man) Goes By Ambulance (1 X A Month) For "Rolling Seizures" That We Can't Stop Since He Was 2 Yrs Old.

We Take PICTURES/VIDEOS Because Sometimes We Are In The Hospital FOR Days & That How We Let OUR #FAMILY and #TeamDariusPVLArmyFamily Know How He's Doing!

I TAKE PICTURES EVERYDAY, No Matter What Is Going On (Happy, Sad, Seizures, Hospitals, Playing Nintendo With FUTURE (1st) Round Draft Pick Football Players DeJon Gomes and Prince Amakamara Or/ Famous *MMA-Fighters* Shane Carwin and EEG Testing Or EKG Testing Or EVEN Skin Testing Like YOUR Last Post On (YOUR PAGE) Of Ur Son!

UNLESS, You Live Everyday WONDERING If Your Son Is Going To ****WAKE UP**** In The Morning and Did NOT PASS In The Middle Of The Night Like So Many Children Do Who Have #PVL and/Or Says, "I LOVE YOU, MOMMA" Every Morning" Please DO NOT JUDGE ME For HOW I Choose To Share & Celebrate MY SON, *Darius Jacob Antonides* LIFE With The World. I Feel That My Son Was Sent Here To #Inspire, #Motivate #Educate and To Be LOVED 4 Just Being Him! Since He Is Too Young To Tell His Story To Help Others Who Are Living With #PVL and/Or Parents Of Children 2 Know What To Expect From Their Special Bundles Of Joy! If WE Could/Did Help (1) Parent, Doctors Or Older Children That Live With #PVL Then D-Man and I Have DONE OUR JOB! I AM PROUD OF MY POSTINGS....THEY SHOW THE ABSOLUTE STRONG SPIRIT That My Son, D-Man Envelops Within Him!!!!! He Did Not Ask For The Cards He Was Dealt But He SURE DOES Put A (SMILE On His Face Everyday & A Thumbs Up) That Most People INCLUDING ME Would Not/Could Not Do Either! I Hope That You Have Learned NOT TO JUDGE A PICTURE By It's COVER!

Thank You For Reminding Me Why I Put SO Many Hours & Years I Put Into This! Sometimes I Forget When I Am Exhausted and Feel Like It Is A Job! People Like You, Remind Me Why What I Do Is More Of A Blessing!

Stephanie Hebard & The EVER GREAT, D-Man :*

  • 1042 days ago via site
  • 182

Never Thought I Would See Those 2 Teams Next To Each Other, EVER! #Nebraska SO Bad There Not Even CLOSE 2 The Top #25 (Hmmmmmmmm) BTW #OREGON, Ur Welcome 4 #USC Taking Out #Stanford !!!!! Stephanie

  • 1043 days ago via site
  • 268

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!

  • 1043 days ago via site
  • 152

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!

  • 1043 days ago via site
  • 129

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 104

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 88

  • 1043 days ago via site
  • 66

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 83

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 80

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 83

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 89

D-Man In St. Elizabeth Hospital @ 6am Stephanie Hebard Greg Antonides @ Saint Elizabeth's Hospital and Home!!!!!!

  • 1043 days ago via site
  • 75