Darius Antonides

@TeamDarius

I'm (13) & My Mom Is Starting A Charity 4 All PVL Kids Like Me! PLEASE HELP MY MOM & ME! #PVLWARRIOR #ONELOVE

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D-Man @ (M.D.) This Morning...He Lost Another (3) Lbs, He Has Now Gone From 129 to 108lbs. Dr. Wants Me 2 Do A "Food Diary" Not Sure What Good That's Going 2 Do But Whatever. We Are Not Starving The Kid. It Has Been This Damn Drug...He Hasn't Had An Appetite 4 Months. I'm Hand Feeding Him Except 4 School. Which I Just Got Told 2Day, If Darius Doesn't Want To Take His Normal Seizure Pills, They Can't Force Him.....Even In A Comatose State (D-Man) Has Already Picked Up On That. They Say It Takes Them 20 Minutes or So, It Takes Me 20 Seconds. *Believe That!" So I Got Told That I Might Have 2 Come Down & Give Him Pills...***ARE U BLANKING KIDDING ME!***** That Arnrey-Streak Is In There.....JUST GIVE D-MAN THE KEYS 2 THE SCHOOL...HE WILL PLAY U EVERY TIME! — feeling annoyed in Lincoln, Nebraska.

  • 281 days ago via site
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D-Man @ (M.D.) This Morning...He Lost Another (3) Lbs, He Has Now Gone From 129 to 108lbs. Dr. Wants Me 2 Do A "Food Diary" Not Sure What Good That's Going 2 Do But Whatever. We Are Not Starving The Kid. It Has Been This Damn Drug...He Hasn't Had An Appetite 4 Months. I'm Hand Feeding Him Except 4 School. Which I Just Got Told 2Day, If Darius Doesn't Want To Take His Normal Seizure Pills, They Can't Force Him.....Even In A Comatose State (D-Man) Has Already Picked Up On That. They Say It Takes Them 20 Minutes or So, It Takes Me 20 Seconds. *Believe That!" So I Got Told That I Might Have 2 Come Down & Give Him Pills...***ARE U BLANKING KIDDING ME!***** That Arnrey-Streak Is In There.....JUST GIVE D-MAN THE KEYS 2 THE SCHOOL...HE WILL PLAY U EVERY TIME! — feeling annoyed in Lincoln, Nebraska.

  • 281 days ago via site
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Yes, Darius Is Half Asleep!
1st Day Of School Without "ONFI" ~ We Will See How It Goes!
Tomorrow We Get To Be Reamed by The School & Lincoln Public School District Over His Truencies. They Get To Tell Me What A (Bad) Mom I Am For Keeping Darius Home When He Has Been In A Comatose State When They Have Sent Him Home (3) Times In The Last 2 Weeks Saying He's "Un-Teachable".....Now They Should Understand On My End He's "Un-Parentable" But They Don't! — feeling overwhelmed in Lincoln, Nebraska.

  • 282 days ago via site
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TODAY:
Starts The (1st) Day Without That *POISON* ~~~ "ONFI"! We Have 2 Start Over With Everything. D-Man STARTED Wetting The Bed Last Week SO Now He Is Wearing Diapers. This Is Going 2 Take Everything I Have 2 Teach This Child Everything Over Again But D-Man's Favorite Saying Is....
"It Is What It Is & U Don't Forfeit!" — feeling heartbroken in Lincoln, Nebraska.

  • 283 days ago via site
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(Day 1) Off "ONFI"
Picture Taken (4 Minutes) Ago! Ist Day Of The REST of D-Man's Life WHATEVER That Turns Out 2 Be. Maybe It Will Be The (Same) Darius Or A Different (Darius) Whichever We Will Love Him Just The SAME He Will Be Having The Most Important BIRTHDAY Coming Up (Age 13), Dr.s Didn't Think He Would Make It 13 Minutes & Here We Come Up (On 13) Years Old. I Hope This Is Just A SPEED-BUMP Like SO MANY OTHERS But No-One Knows But God Knows How This One Is Going 2 Turn Out!!!!!!!! Stephanie & D-Man — feeling optimistic with Darius'sPoppi Antonides in Lincoln, Nebraska.

  • 283 days ago via site
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TODAY:
Starts The (1st) Day Without That *POISON* ~~~ "ONFI"! We Have 2 Start Over With Everything. D-Man STARTED Wetting The Bed Last Week SO Now He Is Wearing Diapers. This Is Going 2 Take Everything I Have 2 Teach This Child Everything Over Again But D-Man's Favorite Saying Is....
"It Is What It Is & U Don't Forfeit!" — feeling heartbroken in Lincoln, NE.

  • 283 days ago via site
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We Had A Fullly-Functioning (13) Yrs Old....2 1/2 Months Ago....Dr.s "WTF" Have U Done 2 My KID! SOME MEDICATIONS SHOULD BE TESTED MORE THOURGHLY BE4 GIVEN 2 KIDS AND/OR ADULTS MAYBE ! #BADCDC #MEDICATIONLOBBIESTINWASHINGTONDC

  • 288 days ago via site
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Picture taken 5 Minutes Ago As Dad Feeds D-Man! He Has 2 Be Fed (3X) A Day & Been (Non) Verbal For About 2 1/2 Months.Now!

  • 288 days ago via site
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Picture taken 5 Minutes Ago As Dad Feeds D-Man! He Has 2 Be Fed (3X) A Day & Been (Non) Verbal For About 2 1/2 Months.Now!

  • 288 days ago via site
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Picture taken 5 Minutes Ago As Dad Feeds D-Man! He Has 2 Be Fed (3X) A Day & Been (Non) Verbal For About 2 1/2 Months.Now!

  • 288 days ago via site
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Just Wanted To Up-Date Everyone...D-Man Is Very Unstable Medically & Has Been 4 Weeks. Please Give Him A Thought Or Two.....The Meds That Were Given To Him (Have Caused Comatose Like Behavior & Now That Dr.s Are Trying To Ween Him Off....Several Hospitilizations & Seizures Are Happening Daily & Oxgen Is Needed Almost Daily. He Has Made School 4 Days In 2 Weeks.
Thanks, Stephanie Hebard

  • 288 days ago via site
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D-Man Is On (Day-2) Of Coming Of "LAMECTAL". It Is An **Anti-Seizure" Drug That He Has Been On Since He Was An Infant. During Some Labs In (June 2014) ~Dr.s Found He Was @ TOXIC DOSES. There Has Been Some (Liver Damage) But He Was 2 Be Pulled Off Immediately of This Drug After [12 1/2 Years]. Which Has Taken (6 Weeks), We Are On [4 Weeks-2 Days]. We Finally Took The Last Pill Away Yesterday Morning @ 5am........(D-Man) ~Slept Most Of The Day But He Had Shakes, Trembling & Could Keep Nothing Down. I Have Been Assured By The (2) Doctors Involved & The Pharmacist: D-Man Is Feeling Uncomfortable But Not In Pain. That Is Why I Disappeared For A Couple Of Months...I Felt D-Man Deserved To Go Thro~ALONE! No Pictures, Except For FUNERAL. He Has Had A Seizure Almost Everyday Since We Started 30 Days Ago. He Has Been In Hospital Twice For Fluids/Ativan IV 2 Stop Seizures. As They Are Taken Him Off "LAMECTAL" They Are Putting Him On A Drug Called "ONFI". He Has Been Given This Drug Becuz He Has A New Diagnosis Of (LGS) Plus PVL...It Is Extremely Rare, Only 1% Of All Epileptic/PVL Children & Adults Get it. A (EEG) In June 2014 (Confirmed It) So I Will EXPLAIN (LGS) But Most Everybody Has Internet...U Can Go To ****(LGS) On WIKIPEDIA Or Much Better EXPLANATION @ *****ONFI.COM*******

WE LOVE YOU
STEPHANIE & D-MAN ---------->---------->---------@ A Rose 4 All! #Sweet

  • 330 days ago via site
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Hey Guys..been (1) Month Since Dnet-Man/I Moved Into Our New House! Took Me (3 1/2) Weeks 2 Get Internet.....About 100 Year Old House. Beautiful Wood-Work & HUGE Kitchen, (3) Bedroom, Finished Basement, 2 Bath & Awesome Porch! I get 2 Watch 4 Lanes of Traffic...Try & Wreck Daily Since Right In Front Of My House It Goes From (2) Lanes To (1) Lane. Rush Hours Are Awesome, Road-Rage A Plenty! SO Glad I Moved From Where I Was. I Owe Everybody Money....I (Hemorrhaged) Money I Didn't Have...SO This Month Should Be Interesting! !Darius Is Not Handling The Change Well & Just Getting Over "Whooping Cough" with (3) Different Antibiotics & (3) Months Of Coughing! We Also Have Had A Lot of Seizures With The Move. He Has Had 13 Seizures In 30 Days. That's A Lot!

Darius Graduated 6th Grade @ His Old School! #EXCELLENT! We Are So PROUD Of Him! D-Man's NEW MIDDLE SCHOOL Is Kind Of SMALL, Bland, and WONT GO! His LIFE Is More IMPORTANT Than The DISTRICT He's IN! #RIGHT

Here Is A #PIX From This Morning! My Theme 4 The #NEWHOUSE Is BEACHY-EE....I Have Been Collectins @ 4 many years! Anticipating This Move, For The Last (4) Years @ Least. SO I Wanted 2 #BRINGCALI2NEBRASKA SO ND HIM! We Love U Guys So Much 4 Hnaging In With Us! Thro The Move & Other Stuff....D-Man Has The BEST #PVL FAMILY SUPPORT EVER!!!!!!

Much Love, Stephanie & D-Man #WeAreBack #DailyPosts #AnyIdeasAboutBeacheeStuff2Make #InteriorDecoraterIdeasNeeded #ASAP — feeling excited in Lincoln, NE. (7 photos)

  • 394 days ago via site
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Just To Get Everyone To Date. I Moved On April 30th To NEW House In Lincoln. I Didn't Get Out Of Old House Until 15th Of May......Darius & Greg Antonides , Yesterday Morning of D-Man's (6th Grade-Graduation) this was 12 Hours Later, Both Greg & Darius Were Taken From New house By (911) ~ (8) Hrs Apart! A Picture Is Worth A 1000 Words. I Have 2 Lay Down while Greg & Darius Are..... Will EXPLAIN LATER.... Stephanie & D-Man — feeling sick.

  • 404 days ago via site
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@DiegoSanchezUFC  @TeamDarius  Here's The Video I  #DM  You About! ENJOY!!!!!! #PVLWARRIOR #Dman Stephanie & D-Man
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Here's The Video I #DM You About! ENJOY!!!!!! #PVLWARRIOR #Dman Stephanie & D-Man

  • 433 days ago via site
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Happy Easter From @TeamDarius  ~Stephanie & D-Man (Video)
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Happy Easter From ~Stephanie & D-Man (Video)

  • 437 days ago via site
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Found Out That (Housing) Did Give Me My (3) Bedroom Certificate! So D-Man's "Seizure Room" Is Safe! I Have To Be Out Of Where I Live On April 30th @ Midnight & Can't Move Anywhere Until May 1st (Crazy!) Landlord Here Said, No 2 The (24) Hr. Extention. That Just Puts More Pressure On me, Cuz It Will Take (1) Day For (CPS) 2 Here D-Man Has No- Roof and There it All Goes To Hell! Yes, I Could Be SO POSITIVE That In 30 Days This Is All Going To Happen But I Am A Realist! It Didn't Take 30 Days To Get Into This Mess & It Has To Take 30 Days To Get Out! NOT GOOD ODDS!! Darius Came Home Early From School About 1:00pm With A Seizure <<<<<SUCKS>>>> Stephanie — feeling exhausted.

  • 456 days ago via site
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WHEN I GET BACK FROM MY HOUSING APPT APPT-LATER I WILL UPLOAD ALL THE PIX'S...I NEVER FORGOT THE #ARMY EVERYDAY JUST HAD NO ENERGY TO POST OR EXPLAIN WHAT IT TOOK 4 HRS TO TYPE TODAY!

  • 456 days ago via site
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TESTING ORDERED FROM (CPS) ~POOR D-MAN (2 WEEKS IN A ROW)

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TESTING ORDERED FROM (CPS) ~POOR D-MAN (2 WEEKS IN A ROW)

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